General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
Annabelle’s Story

“I love going to Rangers and I’m now doing my Bronze Duke of Edinburgh Award…Batten disease will not stop me.” Annabelle Hover, aged 14, tells of the difficulties of living with CLN3 as a teenager, and the amazing achievements she…

Read More
Reece’s Story

“We can’t stay hidden away forever, there will be tough decisions... but for now we will keep on going and hope things start improving soon.” Donna Brown tells her story about the highs and lows of life in ‘lockdown’ with…

Read More
BDSRA Online Conference July 10th – 12th 2020

BDSRA online conference July 10th - 12th 2020 SIGN UP DEADLINE TUESDAY 9TH JUNE We are official partners of the BDSRA (Batten Disease Support and Research Association) in the US as they are holding their annual family conference entirely online.…

Read More
International Batten Disease Awareness Day- Tuesday 9th June- Our Plans

International Batten Disease Awareness Day Tuesday 9th June 2020 4 DAYS TO GO! We are getting very excited about Batten disease awareness day next Tuesday 9th June which we are sharing with international peers. We are kicking off our awareness…

Read More
BDFA INSTAGRAM UPDATE! #bdfa_battendiseaseuk

BDFA INSTAGRAM UPDATE! After a LOT of back and forth and trying to gain access to the BDFA instagram account, we have had to create a new account, so please follow us and tag the new #bdfa_battendiseaseuk https://www.instagram.com/bdfa_battendiseaseuk/ Come and…

Read More
ONE WEEK TO GO Untill International Batten Disease Awareness Day 2020!

ONE WEEK TO GO until International Batten Disease Awareness Day! What you can do to raiseawarenes and be orange on the day? Use #battendiseaseuk #battenday2020 on your social media posts Dress in orange, but not just you, the dog, the…

Read More
Dont Forget Batten Disease Awareness Day- Tuesday June 9th 2020

Dont Forget Batten Disease Awareness Day Tuesday June 9th 2020

Read More

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.