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| "The BDFA has given me hope,
encouragement and support and helped me recognise the good things
and that happy times can still be accomplished by my daughter and
the rest of the family" Sharon Burnham |
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Disclaimer |
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All information presented on the BDFA website is covered by this disclaimer. All documents that are presented or downloadable from this site are for information purposes only and are subject to change. The BDFA works hard to ensure that all material contained on this site is accurate. However, we do not guarantee that it is complete, correct or without error. We cannot accept responsibility for any omissions, nor guarantee that materials are up to date. The BDFA publishes stories on this website written by families of their experiences of living with Batten disease. These stories are private accounts written by families who wish to share their experiences with others and as such the BDFA facilitates the sharing of these stories. However this does not mean we endorse the content nor are we liable for it. It is important to remember that children and young people with Batten disease can be affected to different levels of severity and any medical information should always be discussed with medical professionals to ensure it is appropriate for your child."
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