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The Batten Disease Family Association
– for families, professionals and facilitating
research
Batten Disease or the neuronal ceroid lipofuscinoses
(NCLs) is a group of neurodegenerative genetic
diseases occurring in childhood. The BDFA is the
only UK Patient Organisation supporting families and
professionals and facilitating research. |
Come and join our
Family.
Stuart
"During all this time we
have all travelled along an emotional journey of grief, anger,
frustration, guilt, happiness and pleasure. Sometimes we have
struggled when times have been difficult, but we try to stay
strong and hope that we will come through O.K. I’m just so
happy that Stuart has done things that some young people will
never do and he has enjoyed life. He has brought us some tears,
smiles and laughs and hope he will continue to do so for a
little while longer."
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Family
Support |
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About
us |
| Support |
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Contact the BDFA |
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Juvenile Batten Disease |
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What We Do |
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Other Ideas |
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Calender of Events |
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Battens Bulletin |
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Mission Statement |
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Annual Report and Financial
Statement |
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