The BATCure Family Survey is now live!
The BATCure survey is now available to complete online and if you are a parent/carer of an affected child, young person or adult then you should have received an email with a link inviting you to take part. This survey is designed to explore the perspective of families affected by all forms of Batten disease, gathering your thoughts about research and clinical trials to help develop and plan for future treatments. It will take around 15 minutes to complete and the findings will feed into the Batten disease research taking place as part of the BATCure project.
The survey is currently only available in English but eight other languages are to follow.
If you haven’t received the link or if you would like to request a paper copy of the survey then please contact Laura Codd (firstname.lastname@example.org). If you are a bereaved parent and would like to participate, please also contact Laura.
BATCure has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 666918. – To find out more about the project visit: www.batcure.eu