In support of our mission statement, the BDFA has specific funds that have been raised for research. The BDFA also chooses to give funds for research, and so seeks to offer research grants each...
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BDFA Commissioned Research
The BDFA’s mission is to:
Bring light to Batten Disease by being the central point of excellence in the UK for raising awareness, supporting affected families, and facilitating research into the disease.
Over the last 10 years, research has developed significantly and much more is understood about the disease with many more gene variants being identified. For most Batten Disease types, research will come to a point of needing to trial different therapies both in the laboratory and clinically. The BDFA plans to contribute significantly to the course of these developments, particularly in the UK but also in collaboration with organisations and institutions worldwide.
The BDFA were please to sponsor two young scientists Kim Wager (Royal Veterinary College) and Thomas Kuhl (Kings College) to attend the first JNCL PhD symposium hosted by NCL Stiftung. Thomas...
Following on from the success of the BDFA Research Grant Call in 2008 & 2009, when over 30K was awarded in Batten Disease Research Grants directly to UK scientists, the following awards were...
The aim of this project was to identify the support needs of families living with Batten Disease. The results would enable the BDFA to provide this information to families and professionals to...
The BDFA’s Vision is “To bring light to Batten Disease by being the central point of excellence in the UK for supporting affected families and to facilitate research into the disease.”...
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