Useful Contacts with expertise in Batten’s

• Dr Ruth Williams - ruth.williams@gstt.nhs.uk, telephone: 0207 1884004 Consultant Paediatric Neurologist and Medical Advisor to the BDFA
• Ms Sarah Kenrick - s.kenrick@seeability.org, telephone: 01189 817772 Liaison for Juvenile Batten Disease Nursing Care – SeeAbility
• Mrs Barbara Cole – barbara.a.cole@btinternet.com - Liaison for Teaching/ Education.
• Dr Jonathan Cooper - http://neuroscience.iop.kcl.ac.uk/psdl - Senior Lecturer in Experimental Neuropathology
• Dr Sara Mole - http://www.ucl.ac.uk/lmcb/research-groups/mole.htm- Reader in Molecular Cell Biology. NCL Resource is maintained by Dr Mole at http://www.ucl.ac.uk/ncl
• Dr Hannah Mitchison -  http://www.ucl.ac.uk/paediatrics - Senior Lecturer in Molecular Genetics
• Dr Sasha Scambler - sasha.scambler@kcl.ac.uk - Medical Sociologist and Lecturer in Sociology

The BDFA Batten Professional Development Group

The Batten Professional Group was founded in 2005 by Ruth Williams and Sarah Kenrick and is supported by the BDFA. Its aim is to promote excellence in multidisciplinary and interagency working, and share the knowledge, experience and skills in the management and care of children and families affected by Batten Disease. The Group works with the BDFA to provide training for professional development. Plans are being made for training days in November 2008 and Spring 2009 – please contact us at the BDFA bdfa.info@btinternet.com to be sent information on these events or for more information about this group.