About Batten Disease

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A supportive, informative, networking organisation for the families, carers and professionals giving care to children and adults with battens disease

 

 
   

 

BDFA Professionals

Useful Contacts with expertise in Batten’s

The BDFA Batten Professional Development Group

The Batten Professional Group was founded in 2005 by Ruth Williams and Sarah Kenrick and is supported by the BDFA. Its aim is to promote excellence in multidisciplinary and interagency working, and share the knowledge, experience and skills in the management and care of children and families affected by Batten Disease. The Group works with the BDFA to provide training for professional development. Plans are being made for training days in November 2008 and Spring 2009 – please contact us at the BDFA bdfa.info@btinternet.com to be sent information on these events or for more information about this group.

 

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