General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
ITV This Morning – The Harrison Family

The lovely Harrison family whose son James has CLN1 (Infantile Batten disease) will be raising awareness on This Morning on Monday 5th October. Please watch and let people know, a great platform to raise awareness.  

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Appeal To Build First Rare Diseases Centre For Children

Birmingham Children's Hospital is launching a £3.65 million appeal to raise money to build the UK's first rare diseases centre for children.   Read more here

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Good Morning Britain’s ‘Tough Mums’ – Jenny Shackleton

We already knew she was tough, running over 150km of muddy obstacle races this year raising money for the BDFA, and now it's official. Jenny Shackleton has been chosen as one of ITV's, Good Morning Britain's 'Tough Mums'. Watch this Thursday…

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BDFA Conference Draft Programmes

Below you can download or read the draft programmes for the conference. Conference Programme Children's Programme

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Fundraiser Vacancy

This is a great opportunity for a motivated, highly-organised individual to make a significant contribution as part of a team to the development of a growing charity to help it achieve its Vision of a world without Batten disease.

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Dr Claire Russell’s Lab At Royal Veterinary College, London

Invitation to Dr Claire Russell’s Lab at Royal Veterinary College, London Friday 25th September 2015 11am-4pm Royal College Street London NW1 0TU

Recreating NCL (Batten disease) in animals allows us to understand what processes go wrong in the disease and enables the testing of new therapeutic approaches. In particular, zebrafish have unique features which make them easy to study and manipulate to help us to better understand these diseases.

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BATCure Research Consortium News

The BDFA is delighted to announce that the BATCure Research Consortium headed up by Dr Sara Mole at University College London has been awarded an EU Horizon2020 Innovation Grant of 6 million Euros to investigate potential therapies for CLN3, CLN6…

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Board Of Trustees Vacancies

Do you, a friend, relative or colleague have the time, skills and commitment to support our work and help us achieve our vision of a world without Batten disease? We have vacancies on our Board of Trustees and would love…

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Cycle To The Circle – Read About The Journey!

The Cycle to the Circle team have made it! You can read about the amazing journey and why they have done it here - Words form the team on completion - Worth it for 'the cause'. A big thank you to BDFA,…

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Right Chair, Right Time, Right Now’ Campaign

We have just pledged our support of the 'Right Chair, Right Time, Right Now' Campaign. This campaign is working to improve the quality and effectiveness of wheelchair services across England. You can pledge your support for this campaign here: http://www.rightwheelchair.org.uk/

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To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.