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Music Recruitment

We are thrilled to announce that the Cambridge Institute of Music Therapy will be running a research project for children with Batten disease this year.

Funded by the Worshipful Company of Musicians, Dr. Rebecca Atkinson will be interviewing parents about what music means to their child.

This research feeds into a wider project looking into the impact of music therapy for children with Battens, and there will also be immersive performances set up this year, from young artists in and around London.

If you would like to take part in an interview online, please contact Rebecca on Rebecca.atkinson@aru.ac.uk

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease