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LAST CALL TO SIGN UP!! TODAY BDSRA Online Conference July 10TH- 12TH 2020

     LAST CALL TO SIGN UP!! TODAY BDSRA online conference July 10TH- 12TH 2020 *** As families, you can log in at www.bdsraconference.org or https://bdsra.org/bdsra-conference/ to sign up. ****** Here is a little more info if you missed it…

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BDSRA Online Conference July 10th – 12th 2020

BDSRA online conference July 10th - 12th 2020 SIGN UP DEADLINE TUESDAY 9TH JUNE We are official partners of the BDSRA (Batten Disease Support and Research Association) in the US as they are holding their annual family conference entirely online.…

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BDFA 2020 Conference News

Conference News Postponement of our face to face conference   As I am sure you will understand, we have made the difficult decision to postpone our conference due to Covid19. The future is uncertain and October feels too soon for…

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BDFA Financial And Organisation Update May 2020

BDFA Financial and Organisation Update May 2020   We held a zoom meeting earlier this month to discuss the BDFA’s accounts (year-end August 2019) and we were joined by 11 parents as well as professionals working in the Batten arena.…

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Family Conference 2017 Information

These are the Conference documents that have been sent to those attending. If you require them again please see below. Conference Outline Kids Conference Outline Confirmation Letter   There is now LIMITED Booking available for BDFA Family Conference 2017 -…

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Family Conference 2017 – Save The Date

The BDFA conference will be held from 24th-26th November 2017 at the Crowne Plaza Hotel in Stratford Upon Avon. More details to follow soon. Look forward to seeing you there.

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Family Conference 2016

After our amazing Family Conference last weekend. We have posted the photos taken over the weekend on out facebook page for you to see and share! We will have our video up very soon!

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Family Conference 2016 Information

We are pleased to invite you to the 2016 BDFA Family Conference which will be held on: Friday 18th - Sunday 20th November 2016 from 9.30am – 4.00pm at the Holiday Inn Bridgefoot Quay, Warwick Road, Stratford-upon-Avon CV37 6YR There…

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Video – Family Networking Weekend 2015

This October our Family Conference was held at the Village Hotel in Coventry. Families, staff and professionals started arriving on the Friday, meeting up with old friends and making new ones. The AGM on Saturday morning, included a keynote speech…

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Family Networking Weekend

Its our Family Networking Weekend and you can keep up to date on our Facebook page and Twitter. After the weekend, we will have our video from the event as well as lots of pictures for you to see.

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Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

 

All donations help us to provide the best support we can to families affected by Batten Disease.

 

Thank you for your support.