General: 07876 682589    |   Fundraising: 07876 682589   |   Support: 0800 046 9832  
The Amber Trust – Music Is Not Just  A Pastime, It’s A Lifeline

We know that many children and young people living with a diagnosis of an NCL love music so we are delighted to be working closely with our friends at the Amber Trust who aim to enable children and young people…

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The Invisible Patients

The Invisible Patients: New report reveals the alarming state of neurology services The Neurological Alliance has announced the launch of its new report, The Invisible Patients: Revealing the state of neurology services. Bringing together the findings of the Neurological Alliance’s…

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BioMarin (BMRN)

BioMarin (BMRN) Says early data from Phase 1/2 BMN190 Study Shows Stabilisation of Disease. We are all very encouraged by the work of our partners in the scientific and pharmaceutical communities and hugely grateful to the courage of those parents and…

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Step By Step Guide To Claiming Disability Living Allowance For Your Child

Cerebra have created a step by step guide to claiming Disability Living Allowance for your child. A fantastic step by step guide to claiming Disability Living Allowance for your child, which has been designed to make completing the form as…

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Work Of Seeability At Heather House Recognised

We are very privileged to work with the dedicated and outstanding team from Seeability at Heather House who support young people living with a CLN3 diagnosis. Delighted that their work has been recognised: STAFF at the Tadley branch of charity…

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This Morning Appearence

Recently the Harrison family appeared on ITV 1's This Morning as part of the Text Santa appeal. One of the charities supported is Together for Short Lives. As well as raising much needed awareness for them, it was also great to…

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Job Opportunity – Clinical Nurse Specialist In Battens Disease

We are delighted to announce that thanks to every one of you who has run through mud, swam Scottish Lochs, cycled the length of the country, drunk coffee, walked, ate cake, had hair cuts and everything else in between to…

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Kidz Up North – November 20th

Thursday, 20th November 2014 – 9.30am – 4.30pm EventCity, Barton Dock Road, Manchester, M17 8AS, (Near the Trafford Centre) More Info here Free entry, free parking, fully accessible! The show guide for this event is now attached. · Do you know…

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