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Ben Nevis Climb Complete!

Well done to our intrepid team of Ben Nevis conquerors! Apparently it was a lot more difficult than anticipated, so why not support them by donating to the BDFA HERE

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Awareness Day – 3rd June 2016

On the 3rd June, we would like to mark Batten Disease Awareness Day and we would love for you to help us turn the world orange! Without awareness our job of securing vital services for families and essential research into…

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Batting For Batten Lunch 2016

We are very excited to announce our Charity lunch in the Long room at Lord's: Batting for Batten. The lunch starts at Midday until 4PM, on Wednesday 6th July 2016. Our Patron Sir Andrew Strauss will be in attendance along with other world…

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4 Simple Ways To Raise Money For The BDFA

#1 GIVE AS YOU LIVE Give as you Live is a very simple way to start raising money for the BDFA whilst shopping online at over 4,100 leading stores such as Amazon, Tesco, John Lewis, Boots and more. View all…

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Family Conference 2016 Information

We are pleased to invite you to the 2016 BDFA Family Conference which will be held on: Friday 18th - Sunday 20th November 2016 from 9.30am – 4.00pm at the Holiday Inn Bridgefoot Quay, Warwick Road, Stratford-upon-Avon CV37 6YR There…

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4 Easter Themed Fundraising Ideas

Easter is a very exciting holiday, especially for children because it involves lots of chocolate and one of the fluffiest and loveliest animals: the bunny. This year Easter is celebrated on March 27, right at the beginning of Spring. With…

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Meet Beatrix The BDFA Easter Bunny

Meet Beatrix the BDFA Easter Bunny, the newest member of the Batten Disease Family Association team. She is a digital bunny, so you can only meet her online. Beatrix is friends with Boris_the_bear and together they are raising awareness for Batten disease.…

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Get Involved – Rare Disease Day 2016

Rare Disease Day takes place on the last day of February each year. This year its the 29th February 2016 The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases…

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Tim Martin Fundraising Lunch

On February 5th 2016, Tim Martin together with Ellen and Laura Bletsoe raised over £30,000 for BDFA during a Fundraising Lunch Event at the City of London Club. Tim Martin met Ellen at an event they both attended last year. …

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(HRH) The Countess Of Wessex – Shooting Star Chase Hospice

Her Royal Highness (HRH) The Countess of Wessex put her artistic skills to the test when she joined supported children and families for some cake decorating at Christopher’s on Tuesday 9 February, as part of our Guildford-based hospice’s 15th birthday celebrations.…

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Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.