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Aldemore – BDFA Charity Of The Year!

ALDERMORE ANNOUNCES THE BATTEN DISEASE FAMILY ASSOCIATION AS ITS CHARITY OF THE YEAR  Aldermore employees have chosen the Batten Disease Family Association (BDFA) as their charity of the year for 2016. The Bank’s employees aim to raise £15,000 for the…

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Run 10K For The BDFA

Is your New Year's resolution to get fit and have fun? And to raise money for the BDFA whilst doing it? Then sign up for the Vitality British London 10K, staged through the heart of central London passing many of…

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Jenny Shackleton’s Extreme Fundraising

Starting from 2015, Jennifer Shackleton has been on Obstacle Course Racings to raise money and awareness for BDFA and Batten Disease. Her latest run was in Coventry, last weekend, on 9th of January. Thank you, Jennifer for all your hard…

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Points Of Light Award From The Prime Minister – Duncan & Rod

We are delighted to announce that Duncan Brownnutt and Rod Wark have been awarded the UK Prime Minister's award of the Points of Light. The award recognises those outstanding volunteers who make a change and Duncan and Rod have certainly…

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We Collect STAMPS!

With Christmas Cards landing on your doorstep, its time to remind you that we can raise funds by collecting STAMPS! Support the Batten Disease Family Association (BDFA) by sending your recycled stamps free of charge, simply follow these steps to…

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Ben Nevis 2016 – Fundraising Challenge

We are delighted to announce our fabulous fundraising event - Climb Ben Nevis Ben Nevis (Gaelic translation “Mountain of Heaven”) is the highest point in Scotland and the British Isles, standing at a height of 1343m (roughly 4000ft).  Fort William, on…

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Family Networking Weekend

Its our Family Networking Weekend and you can keep up to date on our Facebook page and Twitter. After the weekend, we will have our video from the event as well as lots of pictures for you to see.

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ITV This Morning – The Harrison Family

The lovely Harrison family whose son James has CLN1 (Infantile Batten disease) will be raising awareness on This Morning on Monday 5th October. Please watch and let people know, a great platform to raise awareness.  

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Good Morning Britain’s ‘Tough Mums’ – Jenny Shackleton

We already knew she was tough, running over 150km of muddy obstacle races this year raising money for the BDFA, and now it's official. Jenny Shackleton has been chosen as one of ITV's, Good Morning Britain's 'Tough Mums'. Watch this Thursday…

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Cycle To The Circle – Read About The Journey!

The Cycle to the Circle team have made it! You can read about the amazing journey and why they have done it here - Words form the team on completion - Worth it for 'the cause'. A big thank you to BDFA,…

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