General: 07876 682589    |   Fundraising: 07876 682589   |   Support: 0800 046 9832  
British 10K London Race 2015

NEW YEAR NEW START! Feeling a little jaded after the excess of Christmas? Looking for some inspiration to make a difference to Batten Disease? Wanting to set yourself a New Year challenge? Why not sign up for the British 10K London Race and…

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Family Conference 2014 Video

After the success that was our Family Weekend, we have the video highlights ready for you to see! Please watch and share! https://vimeo.com/112004121  

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Kidz Up North – November 20th

Thursday, 20th November 2014 – 9.30am – 4.30pm EventCity, Barton Dock Road, Manchester, M17 8AS, (Near the Trafford Centre) More Info here Free entry, free parking, fully accessible! The show guide for this event is now attached. · Do you know…

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An Amazing Weekend

The BDFA Family Conference is over for another year. Lots of families, children and professionals attended. Once we have had chance to re group, we shall have a full review of the weekend. You can see more pictures on our Facebook…

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BDFA Family Conference 2014

We are very pleased to invite you to attend the 2014 BDFA Family Networking Weekend and AGM which will be held on: Saturday 8th and Sunday 9th November 2014 from 10.30am – 4.00pm at RNIB Pears Centre, Wheelwright Lane, Ash Green,…

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Beefy’s Charity Foundation

Batten disease is the most common inherited neurodegenerative disease of children and young adults in the UK.   It develops in a healthy child, and causes progressive deterioration and loss of vision as well as epilepsy and a gradual decline…

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Stamp Collections

As you are aware, we are now collecting used stamps which we can turn into funds for the BDFA. There has been a change to the address to send them to, the new address is as follows. Fundraising Stamps Ltd,…

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Our New Patron – Andrew Strauss.

The Batten Disease Family Association welcomes its new patron, Andrew Strauss. The BDFA are delighted to announce that Andrew Strauss has become a BDFA Patron.  Andrew Strauss is one of the most respected and highly rated cricketers in the world…

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Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

You can also TEXT DONATE 

Text the words BDFA15 £2 / £5 / £10 to 70070

All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.