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Family Conference 2014 Video

After the success that was our Family Weekend, we have the video highlights ready for you to see! Please watch and share! https://vimeo.com/112004121  

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Kidz Up North – November 20th

Thursday, 20th November 2014 – 9.30am – 4.30pm EventCity, Barton Dock Road, Manchester, M17 8AS, (Near the Trafford Centre) More Info here Free entry, free parking, fully accessible! The show guide for this event is now attached. · Do you know…

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An Amazing Weekend

The BDFA Family Conference is over for another year. Lots of families, children and professionals attended. Once we have had chance to re group, we shall have a full review of the weekend. You can see more pictures on our Facebook…

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BDFA Family Conference 2014

We are very pleased to invite you to attend the 2014 BDFA Family Networking Weekend and AGM which will be held on: Saturday 8th and Sunday 9th November 2014 from 10.30am – 4.00pm at RNIB Pears Centre, Wheelwright Lane, Ash Green,…

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Beefy’s Charity Foundation

Batten disease is the most common inherited neurodegenerative disease of children and young adults in the UK.   It develops in a healthy child, and causes progressive deterioration and loss of vision as well as epilepsy and a gradual decline…

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Stamp Collections

As you are aware, we are now collecting used stamps which we can turn into funds for the BDFA. Simply send us your stamps and we will do the rest! We then send the stamps off to be sold by…

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Our New Patron – Andrew Strauss.

The Batten Disease Family Association welcomes its new patron, Andrew Strauss. The BDFA are delighted to announce that Andrew Strauss has become a BDFA Patron.  Andrew Strauss is one of the most respected and highly rated cricketers in the world…

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To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.