The Batten Disease Family Association

Trustees

Chairperson
Julie Pickering
Secretary
Sarah Kenrick  
Treasurer
Alison Jenkins

Heather Band
Marion Bayliss
Liz Gatrell
Philip Glazebrook
Barbra Higgins
Pamela
Hughes
Debbie Jordan
Pauline Muncey
Heather Sickelmore
Kathryn Thompson

Advisors to the BDFA
Dr Ruth Williams - Medical Advisor (Consultant Paediatric Neurologist)
Dr Jonathan Cooper - Scientific Advisor
Dr Sara Mole -
Scientific Advisor
Mrs Barbara Cole - Educational Advisor
Ms Sarah Kenrick -
Nursing/JNCL Liaison

 

BDFA Development Officer
Jan Sablitzky

BDFA Fundraising Officer
Georgette Ward

 


 

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