The Batten Disease Family Association

Trustees

Chairperson
Julie Pickering
Secretary
Sarah Kenrick  
Treasurer
Alison Jenkins


Heather Band
Marion Bayliss
Philip Glazebrook

Mel Hall
Barbra Higgins
Pamela
Hughes
Pauline Muncey
Heather Sickelmore
Kathryn Thompson

 

Advisors to the BDFA
Dr Ruth Williams - Medical Advisor (Consultant Paediatric Neurologist)
Dr Jonathan Cooper - Scientific Advisor
Dr Sara Mole - Scientific Advisor
Mrs Barbara Cole - Educational Advisor

Mrs Shauna Bates - Social Care Advisor
Ms Sarah Kenrick - Nursing/JNCL Liaison

David de la Riviere - ICT advisor
 

BDFA Family Support Officer
Sam Simpson

 

BDFA Fundraising Officer
Georgette Ward

 


 

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