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Useful Contacts with expertise in Batten disease

    * Dr Ruth Williams - ruth.williams@gstt.nhs.uk 0207 1884004
      - Consultant Paediatric Neurologist and Medical Advisor to the BDFA

    * Ms Sarah Kenrick - s.kenrick@seeability.org 01189 817772
      - Liaison for Juvenile Batten Disease Nursing Care - SeeAbility

    * Mrs Barbara Raybould - barbara.raybould@btinternet.com - 07939511205/01932 858828
      - Educational Advisor to the BDFA

    * Mrs Shauna Bates - shauna_mellon@hotmail.com - 07708526546
      - Social Care Advisor to the BDFA

    * Dr Jonathan Cooper - http://neuroscience.iop.kcl.ac.uk/psdl
      - Reader in Experimental Neuropathology, KCL - Scientific Advisor to the BDFA

    * Dr Sara Mole - http://www.ucl.ac.uk/lmcb/research-groups/mole.htm
      - Reader in Molecular Cell Biology, UCL - Scientific Advisor to the BDFA
       The NCL Resource website is maintained by Dr Mole at http://www.ucl.ac.uk/ncl

    * Dr Hannah Mitchison - http://www.ucl.ac.uk/paediatrics
      - Senior Lecturer in Molecular Genetics, UCL ICH

    * Dr Sasha Scambler - sasha.scambler@kcl.ac.uk
      - Medical Sociologist and Lecturer in Sociology, KCL