On the 29th November a fundraising dinner for the BDFA was held at Embankment Gardens in London.  Ellen Bletsoe who is the mother of Laura, who has JNCL, and who has made a huge committment to fundraising for the BDFA, gave a powerful and moving speech about our work and her family's journey with this devastating disease.  The BDFA would like to thank Planit Entertainments, The O'Connor Family, Charlie Carter, Andrew Strauss, Alan Lamb and the many people who were involved and supported us to make this event a huge success.