If you would like to find out more about the Batten Disease Family Association and ways to become involved with our work just complete the form below.  We can then send you our bi-annual newsletter, details about fundraising events and more.  On the contact form you are given the option to find out more about fundraising, support or general information - please choose one of these options and we'll be back in touch.  And, if at any point you'd prefer not to receive any of these, please don't worry - just e-mail us at fundraising@bdfa-uk.org.uk with your details so that we can update your records with your preferences.

Thank you for wanting to find out more about Batten Disease and how to help bring light to Batten's.