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"The BDFA has given me hope, encouragement and support and helped me recognise the good things and that happy times can still be accomplished by my daughter and the rest of the family"
Sharon Burnham

 

 
   

 

Sponsor A BDFA Fundraiser

We can’t all take part in an event but it is possible to encourage others by sponsoring them on their challenges.  Here are a few of the BDFA Fundraisers out there who need your support.

Andrew Marlow is running in the London 10K Race

Andrew is one of our charity runners in this year’s London 10K on Sunday 11th July.  To find out more about why he is running in the race and to sponsor him please click below:

Debbie White is running in the London 10K Race

Debbie is one of our charity runners in this year’s London 10K race on Sunday 11th July.  To find out more about why Debbie is running in this race and to sponsor her please click below:

Two Sarah’s Running for James

The two Sarah’s are running in the London 10K to help raise money for the BDFA if you would like to sponsor them please click here:

Ashbury and Hart in the London 10K

Baccara and Dominic are part of our London 10K running team if you would like to sponsor them please click here:

Nyree in the London 10K

Nyree is running in the London 10K to help make a difference to Batten Disease if you would like to sponsor her please click on this link:  

Paul Newberry

Paul is part of our London 10K Batten’s running team and if you would like to help Paul to raise funds for our work please click on this link.

Matt-Lotta

Matt & Lotta are part of the Batten Disease research team in Dr Jon Cooper’s lab, if you would like to sponsor them as they run in the London 10K please click on the link.

 

Ascot running for Batten’s

Ascot Underwriting are continuing to raise funds for us and this time are running in the London 10K  but this time the money they raise from their justgiving page will fund the Juvenile Batten Disease Information book.  If you would like to sponsor the Ascot team please click here.

Si Running for Batten’s

Simon is running in the London 10K to help raise much needed funds for our work.  If you are able to sponsor Simon please click here.

Need help setting up a justgiving page?

If you are unsure of how to set up a justgiving page or would like that extra support in raising money for Batten Disease Family Association please do give Georgette Ward, our Fundraising Officer a call on 01603 760111 or email: fundraising@bdfa-uk.org.uk .

Calling all friends and families:

If you would like to support your friend or family member at their event please call the fundraising office as we have banners you can use, t-shirts to wear and Thunder Sticks to help make plenty of noise.

Please call Georgette on 01603 760111 or e-mail: fundraising@bdfa-uk.org.uk to order your supplies.  (For event supporters we do have to ask for a donation of £5 for each t-shirt ordered – thank you).

 

 

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