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I  joined the BDFA in September 2012.  At university, I studied Chemistry and then joined Cancer Research UK, where I also completed further studies in Biochemistry.  I spent over 17 years working for the charity and gained extensive laboratory research experience on a wide variety of scientific projects. During this time I gained valuable insight as to how charitable institutes can undertake and promote successful research, which can lead to clinical applications. In recent years I have has also undertaken a variety of paid and voluntary posts in the charitable and education sector.

One of my particular areas of interest is making science accessible, so that all those affected by Batten disease have the information they require to help them understand how all research works in practice & how this relates to Batten disease. I know that many of you are very knowledgeable, but one of the BDFA’s aims with my post is that we can help everyone, who wishes to do so, take their knowledge further.  Whether this is from providing easy to understand Lay Summaries, or more detailed descriptions of scientific advances or clinical developments.

We are at a challenging, but exciting time, in both fundamental and clinical research and I am looking forward to working with scientists and other Batten disease organisations in the coming months to drive forward our research-funding programme. Collaboration between all of us is so important to achieve our aims of effective treatments and ultimately a cure.

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