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How You Can Help

Fundraising

There are so many ways to help fundraise for the BDFA; from taking part in our Sponsored Walk for Batten's, baking cakes in our Baking for Batten's event, running in the London 10K Race, Organising your own ball to jumping out of the sky as a...

Find out more

Find out more about our work by completing this contact form.  It will enable us to respond to your enquiry and we will be able to keep you up to date with the activities that are taking place here at the BDFA.  We look forward to hearing from...

Shop

Visit our new on-line shop to buy items from our range of Batten Disease awareness merchandise including t-shirts, awareness wristbands, ribbons and notelets.  Click on Shop to find out more.

Leave a Legacy

Leaving a legacy to the BDFA will enable our work of supporting families affected by Batten Disease; to help bring further awareness to Batten Disease in the UK and to help fund further Batten Disease research to enable therapies to be found...

Volunteering

Would you like to help the BDFA in a practical way? Do you have hidden talents that you would like to share? We need volunteers to take on a variety of roles within the organisation if you think this could be you please take a look in our...

Donate

The BDFA is the only charity in the UK dedicated to Batten Disease.  Your donation will help us to support families on their journey with Batten Disease, to help bring further awareness to Batten Disease in the UK and to fund further research...