James is father of Lewis Jeynes, who was diagnosed with Batten disease in 2014. For many years Lewis remained undiagnosed and James hopes to make people more aware of Batten disease through his work with the BDFA. James is Chief Executive of MemNet and its Founder Member. For over 24 years he has been working within the membership and associations sectors as a senior manager. He worked in public sector development roles overseas in South Africa, France, Switzerland, UAE, Barbados, Jamaica and Trinidad. James has a passion for creating and developing businesses and is currently an Associate Director with Advantage Public Services, Director of Executive Office Ltd, Director of the Football Argument Ltd and a proud Fellow of the Royal Society of Arts. In his spare time James is a Trustee of The Lewis Jeynes Fund and an Advisor to the NHS England Personal Health Budgets Team.