I started the role of Clinical Nurse Specialist for Batten disease in October 2016. I am a qualified paediatric nurse with experience in general paediatrics, neurology, metabolics and research. I am based at Great Ormond Street Hospital but my role is funded by the BDFA, allowing me to support children and families affected by Batten disease throughout the UK.
I am able to offer ongoing support and guidance to your family and to healthcare professionals involved with your child to ensure they continue to receive high quality care as their needs change.
I am available via e-mail, telephone and, where appropriate, a home visit. Please do not hesitate to contact me via details below.
Tel: 020 7829 8721
