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Links
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Research
Links
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NCL Resource
A gateway
for information on Batten Disease
www.ucl.ac.uk/ncl/ |
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GIG
- (Genetic Interest Group)
Working
to benefit all people affected by genetic disorders
www.gig.org.uk |
RCPCH British
Paediatric Surveillance Unit
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Other
Batten Disease Organisations
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BDSRA
America
Batten
Disease Support and Research Association
www.bdsra.org |
World
Wide Links |
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Medical/Social
Help Organisations
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Child
Bereavement Trust
Working
to help bereaved families
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Contact a
Family
For
families with disabled children
www.cafamily.org.uk |
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SeeAbility
Seeing
beyond disability
www.seeability.org |
ACT
The
Association for Children's Palliative Care
www.act.org.uk |
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Starlight
Children's Foundation
Brightening the lives of seriously and terminally ill
children
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The
Children's Trust
For
children with multiple disabilities
www.thechildrenstrust.org.uk |
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Climb - (Children Living with Inherited Metabolic
Diseases)
The
national Information Centre for Metabolic Diseases
www.climb.org.uk |
Willow
Foundation
Providing
special days for seriously ill young adults
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GOLD
Global
Organisation for Lysosomal Diseases
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Wellchild
Getting
sick children better
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React
Rapid effective assistance for
children with potentially terminal illness
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The Saul and Savannah-Rose
Fraser Trust
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Sacha's Story
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The Jordan Jay Trust
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John & Bridie's Batten Disease
Charity
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The Aidan Moir Appeal
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