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| A supportive, informative, networking organisation for the families, carers and professionals giving care to children and adults with battens disease |
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Wear our New Batten’s T-shirt and tell others about Batten Disease. We now have bright orange Batten’s T-shirts for you to wear and to tell others about Batten Disease and the work of the Batten Disease Family Association. By wearing one for the day you will be amazed at the number of questions you get asked, and this will all help to raise the profile of Batten Disease. So click on the link below and order your t-shirt today…. BDFA Pens and Lapel Pins: We still have pens and lapel pins available to buy, both at £1 each. If you would like to order some please call Georgette Ward, our Fundraising Officer on 01603 760111 or email: fundraising@bdfa-uk.org.uk. Or alternatively enclose a cheque made payable to BDFA and send to Fundraising Officer, BDFA, c/o Heather House, Heather Drive, Tadley, Hampshire, RG26 4QR – stating what items you would like.
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