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This month’s headlines
BDFA awards new grants for research
Findings of the BDFA-commissioned Family Support Project
BDFA helps families keep up with the latest developments in Batten’s
Long-standing Batten’s expert passes away
Recent news
‘Bringing Therapy to Batten Disease’ Workshop a great success
Carers and professionals learn and network at the Batten Disease Training Day
BDFA raise public awareness of Batten Disease
The BDFA sets out a new Vision
BDFA Support Team Lead, Rachel Griffith, talks of her family's experience
Recruitment for the BDFA Clinical Assessment Project continues.
Forthcoming Events Click on the event for more information
4th-5th October 08 Join in our BDFA Celebratory Family Weekend
20th November 08 Batten Disease Professional Development Study Day for Juvenile BD
26th April 09 Run for Batten Disease in the Flora London Marathon in April 2009 or come and support our runners!
8th May 09 Join in the BDFA 4th Sponsored Walk Challenge