NEWS 

This month’s headlines

BDFA awards new grants for research

Findings of the BDFA-commissioned Family Support Project

BDFA helps families keep up with the latest developments in Batten’s

Long-standing Batten’s expert passes away

Recent news

 ‘Bringing Therapy to Batten Disease’ Workshop a great success

Carers and professionals learn and network at the Batten Disease Training Day

BDFA raise public awareness of Batten Disease

The BDFA sets out a new Vision

BDFA Support Team Lead, Rachel Griffith, talks of her family's experience

Recruitment for the BDFA Clinical Assessment Project continues.

Forthcoming Events
Click on the event for more information

4th-5th October 08       Join in our BDFA Celebratory Family Weekend

20^th November 08          Batten Disease Professional Development Study Day for Juvenile BD

26^th April 09                  Run for Batten Disease in the Flora London Marathon in April 2009 or             come and support our runners!

8^th May  09                   Join in the BDFA 4^th Sponsored Walk Challenge