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"It is a comfort to know that there are people here who will talk and who will understand"
Janine

 

 
   

 

NEWS 

This month’s headlines

BDFA Family Conference and AGM 2010

Batting for Batten’s

Batten Disease Awareness Day 2010

Batten Disease Family Association on Facebook

Follow Dr Jon Cooper’s lab on Facebook and Twitter.

BDFA Research Grants Information 2010

Living Life with Batten’s  – Thursday 29th April 2010

Contact your local MP to raise awareness about Rare Diseases such as Batten Disease

Forthcoming Events
Click on the event for more information

October 2010                Baking for Batten's

16th October 2010         BDFA Family Conference

10th November 2010      Juvenile Batten Disease Training Day

17th April 2011               London Marathon

May 2011                      Ebay for Batten's

21st May 2010               Sponsored Walk for Batten's

4th June 2011                Batten Disease Awareness Day

10th July 2011               London 10K Run

 

 

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