Contact your local MP to raise awareness about Rare Diseases such as Batten Disease

 

Rare Disease UK are encouraging all families affected by rare diseases, such as Batten Disease, to write letters to their local MPs to help raise the profile of rare diseases and the challenges that affected individuals and their families face on a day to day basis.  By contacting your local MP you can help to generate political support for rare diseases and highlight the need for a strategy to support those affected. There is a template letter which can be adapted and sent to your local MP and can be obtained by clicking here.

For more information about the work of Rare Disease UK log on to www.raredisease.org.uk