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News
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Krystyna E. Wisniewski, M.D., Ph.D. It is with sadness that in early June we learned of the death of Dr.Krystyna Wisniewski. Dr Wisniewski worked for many years with Batten disease both clinically and in research and was what we considered to be an expert. She was based in Staten Island, New York, USA, at the Institute for Basic research in Developmental Disabilities and the research interests are listed as the molecular mechanisms underlying mental retardation in Down syndrome, the pathogenesis and potential treatment for Neuronal Ceroid Lipofuscinosis, and the Infantile NCL treatment trial. But most importantly to the Batten community and to the families in the USA was her kind and caring manner when helping parents whose children were going through difficult times and the follow up afterwards. She helped so many families over the years to understand what was happening and how best to care for their child. In addition she was instrumental in bringing Batten disease to the attention of the medical and scientific communities and travelled all over the world lecturing and talking about Batten disease. Dr Krystyna Wisniewski was married to Dr Henry Wisniewski, who was an eminent neuropathologist and had two children Thomas and the late Alexander, who both became physicans. Our thoughts are with her son Thomas and family, she will be missed .
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