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Living Life with Batten’s – Thursday 29th April 2010 On the Thursday 29th April the BDFA was pleased to welcome 32 family members and professionals to our Juvenile Batten Disease training day at Guys Hospital in London. Feedback from the day has been extremely positive and we are looking forward to our next Juvenile Day, looking at the needs of young people with Juvenile Batten Disease, at Heather House in November 2010. For more information please contact Sam Simpson, Family Support Officer (funded by the Roald Dahl Foundation) on support@bdfa-uk.org.uk or 01233 639526. |
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