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News
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‘Bringing Therapy to Batten Disease’ Workshop UCL 28 March 2008 a great success We are pleased to report this was a great success with over 40 scientists and clinicians coming together for the first time in the UK to discuss how to bring therapy to Batten’s. The Organizing Committee have identified the top 10 priorities to deliver and other initiatives in order for the BDFA to be as successful and efficient as possible in creating a pathway to move towards therapies for all types of Batten Disease. As, Prof Robin Ali from Moorfields said, it was like creating a ‘virtual institute’ – proving that is an very effective way for the BDFA to use its resources through acting as a catalyst to widen the scientific community’s awareness and participation in Batten Disease-related research. Another is planned for 2010. Find out more about this and our work at the BDFA towards bringing therapy to Batten’s by coming along to our” Batten Disease: Where are we now and where are we going to?” discussion scheduled for Tuesday 17th June at Kings College London. If you are interested, please email bdfa.info@btinternet.com or click here for further information.
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