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This is your chance to
keep up with the latest developments in Batten Disease
and follows
on
from our successful conference, in June last year, on
current worldwide Batten Disease research and therapy
developments after the opportunity to tour Dr Cooper's
new lab and meet the rest of his team. The day,
co-hosted by the Batten Disease Family Association with
the UK’s main Batten Disease research and clinical
professionals, was very successful, both for the group
of 30 family members, scientists and professionals
meeting each other as well as having the time to discuss
and talk in more detail about current developments in
Batten Disease. As the feedback from the day has been
excellent – everyone found it very interesting and
supportive - all agreed that another one should be
organised in 2008 so the next one ‘Where are we now and
where are we going?' will be held on Tuesday 17th
June 2008, again at Dr Cooper’s lab in London.
If you are interested,
please contact BDFA Development Officer
0115 965 4815
info@bdfa-uk.org.uk
for further information.
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