Our plans for the future

• The BDFA will continue to optimise the support it gives affected families and related health professionals.  We also plan to actively increase the awareness of Batten disease, contributing to national decisions on management of the disease and continue to facilitate UK and worldwide clinical and research developments.   
• Over the last 10 years, research has developed significantly and much more is understood about the disease with many more gene variants of the disease identified. For most Batten Disease types, research is at or will come to a point of needing to trial different therapies over the course of the next decade, both in the laboratories and clinically. The BDFA plans to contribute significantly to the course of these developments, particularly in the UK.
• The BDFA plans to become the national voice for Batten Disease service development in the UK.
• As the only dedicated UK Batten Disease charity supporting affected families, raising awareness and facilitating research into the disease the BDFA now aims to become a stronger UK voice for Batten Disease in order to communicate and implement members’ wants and needs and influence UK decisions on the management of Batten Disease whilst continuing to facilitate research into potential therapies and ultimately a cure.