Batten Disease Family Association Privacy Statement

The BDFA is committed to protecting the privacy of those who register with us or visit our website. Any personal details you supply via e-mail from our websites, including any sensitive data, will only be used by the BDFA  and will not be made available to any Third Party without permission. Personal details covers any data that enables us to identify you as an individual such as your name, telephone number and email address. When you supply information to us, we are legally obliged by the Data Protection Act 1998 to ensure that the information you have provided is only used for the purpose for which it was requested, and to ensure that the data is kept securely. However, you should be aware that if you use standard e-mail for communication  we cannot guarantee that it remains confidential whilst in transit.