The Batten Disease Professional Development Group was founded in 2005 by Ruth Williams and Sarah Kenrick. The group aims to promote excellence in multidisciplinary and interagency working, and share the knowledge, experience and skills in the management and care of children, young adults and their families affected by Batten Disease. This is a key resource for professionals, and is supported by and administered through the BDFA as we seek to promote excellence in supporting affected UK families and continuing to educate the professionals around them. Our work is supported  by SeeAbility and Guy's and St Thomas' NHS Foundation Trust in providing facilities and staff resources to enable all this to happen.

Please let your care professionals know about the BDFA and the support we can offer them through putting them in touch with other professionals to share their Batten's expertise, training days and networking opportunities.

Living Life with Batten’s Thursday 29th March 2012 Royal Holloway College, London: A BDFA training day for professionals caring for children and young people with Juvenile Batten Disease