A key aim of the BDFA is to seek to promote excellence in supporting affected UK families and continuing to educate the professionals around them. Please let your care professionals know about the BDFA and the support we can offer them through putting them in touch with other professionals to share their Batten’s expertise, training days and networking opportunities.
Barbara Cole, BDFA Education Liaison Link, 01932 858828, firstname.lastname@example.org
Laura Lee, Clinical Nurse Specialist, Batten Disease, 020 7829 8721 Laura.Lee@gosh.nhs.uk
Medical Advisors to the BDFA
Dr Christine Caren, 01635 298943, email@example.com
Dr Paul Gissen, Wellcome Trust Senior Research Fellow in Clinical Sciences and Consultant in Paediatric Metabolic Medicine, Great Ormond Street Hospital, 0207 813 8331, firstname.lastname@example.org
Dr Barbara Csanyi, Great Ormond Street Hospital, currently on maternity leave.
Scientific Advisors to BDFA
Professor Sara Mole, Professor of Molecular Cell Biology, MRC Laboratory for Molecular Cell Biology, UCL University College London, 0207 679 7257, email@example.com
Professor Jon Cooper, Los Angeles Biomedical Research Institute + 44 (424) 571 7754 firstname.lastname@example.org or email@example.com
Dr. Brenda Williams, Senior Lecturer, Institute of Psychiatry, Psychology & Neuroscience, Kings College London, 020 7848 0097 firstname.lastname@example.org
Dr. Emyr Lloyd-Evans, Senior lecturer, School of Biosciences, Cardiff University, 02920 874304 Lloyd – EvansE@cardiff.ac.uk
Dr. Sander Smith, Principal Research Associate, Department of Genetics, UCL Institute of Ophthalmology, 020 7608 6975 Alexander.email@example.com