A key aim of the BDFA is to seek to promote excellence in supporting affected UK families and continuing to educate the professionals around them. Please let your care professionals know about the BDFA and the support we can offer them through putting them in touch with other professionals to share their Batten’s expertise, training days and networking opportunities.
Laura Lee / Becky Bower, Clinical Nurse Specialist (CNS), Batten Disease, GOSH
Scientific and Medical Professional Advisors
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