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A key aim of the BDFA is to seek to promote excellence in supporting affected UK families and continuing to educate the professionals around them. Please let your care professionals know about the BDFA and the support we can offer them through putting them in touch with other professionals to share their Batten’s expertise, training days and networking opportunities.

Laura Lee / Becky Bower, Clinical Nurse Specialist (CNS), Batten Disease, GOSH


Scientific and Medical Professional Advisors

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For one week only during the Big Give Christmas Challenge, (Tuesday 28th November- Tuesday 5th December) our donate button will redirect you to our campaign page to make your donation which will be DOUBLED!

 Thank you for doubling your donation!