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Schedule For Upcoming CLN Group Meetings

The CLN group meetings have been running for 6 months now and it has been fantastic to see so many of you join us for these regular events.

The next 6 months meetings have now been scheduled and you can find the dates and times below. We would be so pleased to see families at our friendly face-to-face online group, where you can speak to other parents, share stories, support each other and ask practical questions in a safe space. Sarah and Mimi from the BDFA will be there to support too, so grab a cuppa and sit down for a while with others who understand. We welcome family members and careers who just want to listen, please do not feel pressure to speak if you are not comfortable.

Meetings will be held on Tuesday evenings from 8-9 pm and Thursday mornings from 10-11am. Please see schedule for details. The dates and zoom links for all meetings will be sent out before each meeting via email and on social media, as well as on the events page on our website.

http://www.bdfa-uk.org.uk/bdfa-events/

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease