General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
283101796 383774547120912 8252584926942972024 N
283101796_383774547120912_8252584926942972024_n
NW LW
Mat And Justin 2
0Q7A6060
GOSH 1
4. Nina And Lena
Jeffery And Family
Image(1)
286002626_5179122372136010_4301535159457313304_n
283101796 383774547120912 8252584926942972024 N NW LW Mat And Justin 2 0Q7A6060 GOSH 1 4. Nina And Lena Jeffery And Family Image(1) 286002626 5179122372136010 4301535159457313304 N

Our Mission

The BDFA’s mission is to enable everyone who is affected by Batten disease to live life to the full and secure the care and support they need until we find a cure.

The BDFA offers informed guidance and supports families and professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and ultimately a range of cures. 

The BDFA works across the rare disease sector to influence change in policy and processes as a collective voice.

Batten families talk about Battens

Lord Ian Botham speaking about Batten disease, the work of the Batten Disease Family Association and raising awareness.

Latest News

Anneka’s Story

Anneka’s Story

Anneka is proud Grandma to Holly and Max who have CLN2, she tells us about them. I am Grandma to Holly aged 5 and Max 3. There diagnosis of Batten…

read more
Faith’s Story

Faith’s Story

Faith shares her story about her older brother Matthew who has CLN1 Batten disease I have done some research over the years and have never known of an individual with…

read more

Latest News

Beatrice’s Story

Beatrice’s Story

Beatrice's mum Anna tells us their story Beatrice has Batten’s disease CLN2.Bea is a playful little girl, who has many friends and lots of passions. With her striking blonde hair…

read more
Nel’s Story

Nel’s Story

Marika is mum to Nel, who was diagnosed with CLN6 Batten disease. She shares Nel's story It's night, and everyone is asleep. Unfortunately, this night isn't one of the nights…

read more

Visit the online shop to help support the work of the BDFA

Buddy Front FINAL
Buddy Front FINAL
IMG_9546
Bandana FINAL2
Cam-orange-t-shirt-model-2
Large BDFA Awareness Ribbon
BDFA Collection Tin FINAL
BDFA Collection Bucket FINAL
Pin Badge 1 FINAL
Buddy Front FINAL IMG 9546 Bandana FINAL2 Cam Orange T Shirt Model 2 Large BDFA Awareness Ribbon BDFA Collection Tin FINAL BDFA Collection Bucket FINAL Pin Badge 1 FINAL

Make a donation:

To make a donation please click the button to the right.  This link will then take you to a PayPal page where a donation direct to us can be made.

The amount you enter is your choice and PayPal can collect the funds from a debit or credit card account.

Thank you for your donation.