The BDFA’s mission is to enable everyone who is affected by Batten disease to live life to the full and secure the care and support they need until we find a cure.
The BDFA offers informed guidance and supports families and professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and ultimately a range of cures.
The BDFA works across the rare disease sector to influence change in policy and processes as a collective voice.
Latest News
Join our team- Community Fundraiser
We are seeking an experienced Community Fundraising Officer to join the Fundraising Team at the BDFA. The BDFA is the only patient organisation in the UK for families affected by…
BDFA Christmas Card Competition
Help us design our charity Christmas card for 2021! We are looking for some amazing Christmas designs from our batten community to feature on our Christmas card Be as creative…
London Marathon 2021
Wow, can we talk about Sunday??!! We had 5 amazing runners in the London Marathon and 1 marvelous runner who completed it virtually in her local area. BDFA staff were…
Tech For All from The Guide Dogs
Tech For All- ipads for children and young people with a vision impairment We are really pleased to let you all know if an amazing new scheme being run by…
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Here is how:
Shop at smile.amazon.co.uk, select your chosen charity and we’ll donate to your favourite charitable organisation, at no cost to you.
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Thanks!