Are you newly diagnosed? Batten Disease What support is available? How we help How can you get involved? Fundraise & Donate The BDFA’s mission is to enable children and adults who are affected by Batten disease to live life to the full and to provide families with the care and support they need so that they do not walk this path alone. About Us Batten Disease Support Community Research & Treatment Introducing the BDFA Upcoming News BDGRI GRANT APPLICATIONS NOW OPEN! 21 October, 2026 BDGRI GRANT APPLICATIONS NOW OPEN! We are delighted to announce Find out more SAVE THE DATE! Big Give Christmas Challenge 2026- DOUBLE your donations 21 October, 2026 DOUBLE your donations from midday Tuesday 1st December to midday Find out more Research update for the CLN3 Community 13 October, 2026 The University of Michigan has received a $3.9 million NIH Find out more
BDGRI GRANT APPLICATIONS NOW OPEN! 21 October, 2026 BDGRI GRANT APPLICATIONS NOW OPEN! We are delighted to announce Find out more
SAVE THE DATE! Big Give Christmas Challenge 2026- DOUBLE your donations 21 October, 2026 DOUBLE your donations from midday Tuesday 1st December to midday Find out more
Research update for the CLN3 Community 13 October, 2026 The University of Michigan has received a $3.9 million NIH Find out more