Are you newly diagnosed? Batten Disease What support is available? How we help How can you get involved? Fundraise & Donate The BDFA’s mission is to enable children and adults who are affected by Batten disease to live life to the full and to provide families with the care and support they need so that they do not walk this path alone. About Us Batten Disease Support Community Research & Treatment Introducing the BDFA Upcoming News Celebrate 25 Years of BDFA – An Exclusive Evening with Lord Botham 9 October, 2026 Thursday 12th November | 7.30pm–9.00pm | Online Event Join us Find out more Introducing The first BDFA Scientific Affairs & Research Newsletter! 13 August, 2026 The first edition of the BDFA Scientific Affairs & Research Find out more BDFA is supporting The Neurological Alliance calling on the government to introduce a Modern Service Framework for neurological conditions 7 August, 2026 Families with a Batten disease diagnosis are often overwhelmed trying Find out more
Celebrate 25 Years of BDFA – An Exclusive Evening with Lord Botham 9 October, 2026 Thursday 12th November | 7.30pm–9.00pm | Online Event Join us Find out more
Introducing The first BDFA Scientific Affairs & Research Newsletter! 13 August, 2026 The first edition of the BDFA Scientific Affairs & Research Find out more
BDFA is supporting The Neurological Alliance calling on the government to introduce a Modern Service Framework for neurological conditions 7 August, 2026 Families with a Batten disease diagnosis are often overwhelmed trying Find out more