The Batten Disease Family Association will be holding our AGM on Saturday 26th August at 10.30am via zoom.
We hope as many of our community as possible will be able to join us.
More details to follow.
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Donate to the work of the BDFA
With your support we can help support families living with the devastating diagnosis of Batten disease
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease