General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Awareness Day – June 5th 2015

On June 5th we would like to mark Batten Disease Awareness Day and we would love for you to help us turn the world orange! Without awareness our job of securing vital services for families and essential research into potential…

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Incredible Efforts From Fundraisers

We are always humbled by the incredible efforts that our fundraisers go to, to raise awareness and vital funds for our work. Jenny Shackleton is the aunt of beautiful Amber Jutla, and is not just running races but completing the…

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Andrew Strauss Lands Top Cricket Job

Congratulations to our patron Andrew Strauss on being appointed Director of Cricket at the England and Wales Cricket Board, the top job in English cricket. We would like to thank Andrew for his continued support of the BDFA, and his…

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Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease