We are now back in the office after a group of 80 of us spent the weekend at Bourton-on-the-Water in the Cotswolds for the Batten Disease Family Association 10th anniversary walk. We had sunshine and showers to make it a…
Dear Members and Supporters, We are pleased to invite you to the 2015 BDFA Family Networking Weekend and AGM which will be held on: Saturday 17th and Sunday 18th October 2015 from 10.30am – 4.00pm at the Village Hotel -…
The BDFA welcomes the recent announcement by PlasmaTech Biopharmaceuticals, Inc. Professor Kielian and the UNeMed Corporation (the technology transfer and commercialization office (TTO) for the University of Nebraska Medical Center) are to be congratulated for their hard work and vision…
We have an amazing limited edition Painting from Nikky Corker up for grabs. We are running an Online Raffle draw, so you can buy your tickets online, and you will be emailed your ticket and number. It's a one off painting…
