General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Good Morning Britain’s ‘Tough Mums’ – Jenny Shackleton

We already knew she was tough, running over 150km of muddy obstacle races this year raising money for the BDFA, and now it's official. Jenny Shackleton has been chosen as one of ITV's, Good Morning Britain's 'Tough Mums'. Watch this Thursday…

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BDFA Conference Draft Programmes

Below you can download or read the draft programmes for the conference. Conference Programme Children's Programme

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Fundraiser Vacancy

This is a great opportunity for a motivated, highly-organised individual to make a significant contribution as part of a team to the development of a growing charity to help it achieve its Vision of a world without Batten disease.

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Dr Claire Russell’s Lab At Royal Veterinary College, London

Invitation to Dr Claire Russell’s Lab at Royal Veterinary College, London Friday 25th September 2015 11am-4pm Royal College Street London NW1 0TU

Recreating NCL (Batten disease) in animals allows us to understand what processes go wrong in the disease and enables the testing of new therapeutic approaches. In particular, zebrafish have unique features which make them easy to study and manipulate to help us to better understand these diseases.

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Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease