Nominations have opened for the 2015 Well Child Awards. These annual awards, supported by long term partner GSK, celebrates the inspirational qualities of the UK’s seriously ill children and young people along with the dedicated health professionals who go that…
On 29th January Farnborough Freemasons from Mercury Lodge presented a cheque for £850 to Andrea West, Chief Executive Officer of the Batten Disease Family Association, to support them in all their valuable work providing help and assistance to children with…
BDFA are supporting this years Rare Disease Day on February 28th. www.rarediseaseday.org 2015 marks eight consecutive, successful years of Rare Disease Day. Continuing the momentum, Rare Disease Day 2015 puts the focus on the daily lives of patients, families and caregivers…
Did you know, for the price of a cup of coffee you could help the BDFA in a big way. Making a regular donation of just a few pounds a month means we can plan the funding of essentials such as the…
This leaflet was designed to answer some of your questions about what the equipment needs will be for a child or young person living with a diagnosis of an NCL disease. The BDFA Support and Advocacy Partner is available to…
This leaflet was designed to answer some of your questions about financial support available when you are caring for a child or young person living with a diagnosis of an NCL disease. The BDFA Support and Advocacy Partner is available…
You are all invited to our New Office Launch on February 27th 2015 - 12-2pm A chance to meet the team and find out more about what we do. Refreshments provided! The Old Library, 4 Boundary Road, Farnborough, Hants, GU14 6SF Link…
We have signed up as a charity that can now be supported by Recycle4charity - head over to the website and see if you can help. You can recycle ink cartridges and mobile phones, both of which we all go through…
Genetic alliance UK would like to invite you to join us for our week of events exploring how genome sequencing could impact your future. For details of the events and how to book tickets, please visit their website.
Good news for the next step in European Research funding for Batten disease. The proposal submitted by Dr Sara Mole, UCL London, has successfully passed the first round in the European Commission funded project Horizon 2020 Societal Challenge “Health, Demographic…
With your support we can help support families living with the devastating diagnosis of Batten disease
Thank you for making a donation to the work of the BDFA.
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease