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BDSRA CONF Logo 2021

The BDFA is delighted to partner again with the BDSRA (Batten disease support and research association) for their annual conference that is yet again online.

As last year, we will be sending out conference boxes full of activities and conference programmes. We will also be sending out tshirts- free of charge for children and siblings but there will be a charge for adult t-shirts.

The BDFA is an official sponsor this year and will have a virtual booth… more info on this as soon as possible.

To sign up for the conference please follow this link, the BDSRA have put very precise instructions in! After you select your tickets you have to press on the ‘get tickets’ button to take you to the next stage.

Register for BDSRA’s 2021 Family Conference by visiting:

The UK deadline is the 21st of June to sign up.

Make a donation:

To make a donation please click the button to the right.  This link will then take you to a PayPal page where a donation direct to us can be made.

The amount you enter is your choice and PayPal can collect the funds from a debit or credit card account.

Thank you for your donation.