General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Tech For All From The Guide Dogs

Tech For All - ipads for children and young people with a vision impairment We are really pleased to let you all know of an amazing new scheme being run by The Guide Dogs for the Blind Association called Tech…

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Welcome To Sian Fisher, Head Of Family Support

The BDFA is delighted to announce the appointment of Sian Fisher as the charity’s new head of Family Support and Advocacy. Sian will be responsible for all aspects of support and will be tasked with developing our support and advocacy…

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New Office

We have moved!!! Yesterday we got the keys to the new lovely BDFA office near Kings Cross in London. It needs a little organising to make it feel like home but we are all really excited!

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BDFA Office Is Moving To A New Home

We are so excited to annouce that the BDFA will have a new home as of Monday 6th September just a short walk from Kings Cross station in London. Boxes are packed and ready to go, and we can't wait!…

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Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease