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BDFA December 2021 Newsletter Is Here!

Welcome to the BDFA newsletter December edition. The team has been working really hard to get the newsletters going again after a long break. We hope you enjoy the update. Wishing you all a Merry Christmas and a very happy…

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Important Milestone CLN1 Disease Clinical Trial Funded By Taysha Gene Therapies

Taysha Gene Therapies has announced an important milestone for the Queen’s University clinical trial for TSHA-118, a CLN1 disease clinical trial funded by Taysha Gene Therapies. Please read the community letter here http://www.bdfa-uk.org.uk/wp-content/uploads/2021/12/CLN1-CTA-Community-Letter_v3_121621_FINAL.pdf

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Boris The BDFA Bear Has Some Big News!

Boris the BDFA bear has some big news! He is off on his long awaited UK tour! Like the rest of us, Boris had his holiday plans cancelled last year due to COVID so now he’s is making up for…

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