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BDFA Christmas Card Design Competition

After the success of last years BDFA Christmas card design competition, we are launching it for 2022! Make your design colourful and Christmassy and send it into us and your design could be chosen for our Christmas card this year.…

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Has someone gone the extra mile to support you or a member of your family with Batten disease? This is your opportunity to highlight the very best practice across the UK and thank them in a really special way! We…

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Pride Of Batten Awards 2022, Nominations Open!

We are pleased to announce that we will be running the Pride of Batten awards again this year. This is your opportunity to highlight the very best practice across the UK. Who is going the extra mile for your family…

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BDFA Family Conference In Stratford Upon Avon, Thank You!

Every emotion resonated at our family conference in Stratford Upon Avon last weekend, the first in five years. The joy of reunion, the power of connection, the comfort of camaraderie… it was such a special weekend with tears and laughter…

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