General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
BDFA Christmas Cards 2022 On Sale Now

Our Christmas cards for 2022 are on sale in the BDFA shop on the website now! Pack of 12 cards includes 4 from each of our design winners and included envelopes. Visit the BDFA shop here Take me to the…

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BDFA Pride Of Batten Awards Presentation, SATURDAY 3rd DECEMBER

Date change SATURDAY 3rd DECEMBER 2pm Via Zoom The nominations were outstanding this year and the judges have had a tough job on their hands choosing our deserving winners and runners up for this years Pride of Batten awards. We…

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BDFA 2022 Christmas Card Winners Are….

BDFA Christmas Card designs winners are.......WELL DONE to our 3 winners Oliwia, Louis and Arthur, who are all siblings to young people with Batten disease. We will be in touch with our wonderful winners soon, and the cards will be…

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BIG GIVE CHRISTMAS CHALLENGE 2022 – ONE DONATION, TWICE THE IMPACT!

BIG GIVE CHRISTMAS CHALLENGE 2022 – ONE DONATION, TWICE THE IMPACT! MIDDAY TUESDAY 29TH NOVEMBER TO MIDDAY TUESDAY 6TH DECEMBER We are very excited to share with you that the Batten Disease Family Association has been selected to participate in…

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JANUARY 2023 PEER BEFRIENDING COURSE APPLICATIONS OPEN!

Would YOU like to be a BDFA PEER BEFRIENDER? The BDFA were proud to launch a new Peer Befriending service in 2022 to help support families in a way that only other parents of children with Batten Disease will be…

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Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease