General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Christmas Message And Round Up From BDFA CEO

Dear all,As we approach the end of 2024, I would like to express our sincere thanks to all the families in our community for their continued support this year. It has been a challenging year in some respects, but we…

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Welcome Philip Walker As Our New Trusts And Foundations Fundraising Officer

We are thrilled to announce that Philip Walker has joined the BDFA team as our new Trusts and Foundations Fundraising Officer. Philip brings a wealth of expertise and enthusiasm to this vital role, and we are excited to have him…

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Big Give Christmas Challenge 2024 Total Announced!

A grand total of £21,660 including Gift Aid has been raised through our Big Give Christmas Challenge 2024!We would like to take a moment to convey our sincere thanks to our community for your support in raising such a phenomenal…

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Big Give Christmas Challenge 2024 – Now Live!

Our Big Give Christmas Challenge campaign page is now open and doubling donations! We are aiming to raise £15,000 to go towards our Family Support Service and New Bereavement Project in a week! Donations made to our campaign via our…

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Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease