General: 07354 486586    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
290832610 394227679406184 3331220434915759412 N

Today is #InternationalNeonatalScreeningDay and the BDFA are proud to be members of the UK NBS Collaborative working towards meaningful change and extension to the UK newborn bloodspot programme. #INSD2022

Launched last year, the aim of this day is to raise awareness about the value of neonatal screening, and encourage collaboration and the sharing of best practices. We will be providing an update from the UK SMA NBS Alliance in the next couple of weeks.

The INSD website explains:

“The aim of the day is to raise awareness about the value of neonatal screening, as well as encourage collaboration and the sharing of best practices to continually improve routine screening and ensure the newest scientific evidence is incorporated. The day is also about celebrating the vision of those who have helped make neonatal screening possible and will, in turn, encourage a new generation of stakeholders to extend its benefits to more children and a wider range of conditions.”

What does neonatal screening mean for patients?

Timely access to diagnosis, treatment and care

To find out more information regarding INSD, go to their website, HERE

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.