Anna’s mun Laura shares the highs and lows of her diagnosis
Anna was diagnosed with CLN3 Batten disease two years ago. She struggles with depression, anxiety, hallucinations, sleep and terrible meltdowns.
It is the most devastating and heartbreaking disease.
Anna has the most beautiful singing voice, and it’s such a joy to listen to her sing when she is happy and having a good day, we really do cherish those moments.
With your support we can help support families living with the devastating diagnosis of Batten disease
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease